Six years ago, Jaime Muñoz’s doctors in New Mexico told him he did not have long to live. Today, after a new diagnosis and a double-lung transplant in Denver, Jaime Muñoz, 38, can walk into National Jewish Health without oxygen therapy and with hope that he will be with his wife and children long into the future.
This is absolutely fascinating. I have the video posted permanently on the right side of my blog but many have not seen it yet. Please take a few minutes to view this. It is a great learning and experience.
(The original date of this post was 11/01/2010 from www.rawwealth.blogspot.com) It is no secret that the stronger I am before surgery, the stronger I will be post surgery. To think of all the work, work outs that I have done trying to stay in shape. Working my lungs with cardiac exercises, the conditioning and the strength training. Now when I need to do these things the most is when I have the least energy. Yes, that does make sense due to the progression of this disease but it stinks. I could never let all that work go in vein so I started pulmonary therapy when I realized that I could no longer play volleyball. Playing volleyball with two oxygen tanks took a lot of coordination and strength. When the two tanks could not deliver my needs I knew it was time to quit (temporarily of course!) Ironically enough, as I think about it now, it was shortly afterward that I started using oxygen 24/7. So I guess I did get the best bang for my buck as far as oxygen goes. :)
I go to pulmonary rehab three times a week and I can only do 26 to 30 min of cardio but guess what? I do 26 to 30 min of cardio! I know am transitioning back to as much raw, healthy, nutritional foods. Life happened and I fell off the "raw foods" wagon. I am really just trying to get back to being vegetarian. I have been enjoying seafood. Some times I can do these things overnight and other times it is a transition. I have not given up my green smoothies though. These I enjoy almost daily. I feel that if I can eat mostly vegetables perhaps that will get my energy levels up some so that I can move around more. I have become too sedentary. I live my life avoiding oxygen deprivation and avoiding coughing.
Besides I have a few 5K's to run after my surgery. My nurse and I are running the Donor 5K in Philadelphia next year, I have a 5K in Puerto Rico in honor of my cousin. There are three more that I have planned with friends. I have a lot of training to do but first I need to upgrade my equipment.
Live in gratitude
Fear of loss is what creates loss. Love of possibilities is what drives the fulfillment of those possibilities.
What good is it to have something if you constantly live in fear of losing it? In some ways, that's worse than not having it at all.
Instead of living in fear, live in gratitude. Fill your heart with love and thankfulness for all that you now have, so that there is no space left for fear.
Fill your mind with thoughts of the very best of what is possible for your world. Fill your spirit with a bright, sparkling vision of how good you know life can be.
Sure, the superficial things will come and go, so don't let those things define you. Instead, treasure the values that transcend every moment and every circumstance.
The genuine person inside is much more powerful than your ego that always feels so threatened. Live in gratitude and let the real, authentic, courageous person you are, always come shining through.
-- Ralph Marston Celebrate Life, Alma
(The original date of this post was 10/30/2010 from www.rawwealth.blogspot.com)
My biggest struggle with being on the lung transplant list is that someone has to pass in order for me to get lungs. I have thought about this for months, perhaps years since my father had a lung transplant 9 years ago. No matter what, it is still a tough situation to process. I have met a few earth angels along the way that have given me ways to accept this so I should pony up, take the positive and run with it. The only thing is that this is very difficult. I have had to come to the computer four times already trying to write this entree. This is so difficult to put into words.
The best example I could use is that if I had met anyone with any of my cousin Teddy's or niece Patricia's organs it would have comforted me. Unfortunately too much time lapsed for them to give organs because of the way they passed. The comfort and joy that I believe I would feel if I knew my relatives would have given others a second chance in life is what helps me to accept this gift for myself. I was able to process these feelings better when they were for my father but it is very different to internalize for myself.
This is assuming that the organs I receive are from someone who has registered as an organ donor. Now imagine getting organs from someone who was never on the list. These dedicated employee's that work for UNOS make calls to families during the worse times of their lives. These people are grieving and making arrangements for their loved one's passing they are asked to save other people's lives through organ transplantation.
Ignite your passion
Ability is about more than skill. Ability is about more than knowledge.
Though skill and knowledge and experience are important, there's something even more powerful that drives ability. It is passion.
If you do not have a strong desire, fueled by passion, it doesn't really matter how much skill you have. If you lack passion, it doesn't matter how much experience or knowledge you have.
When you are truly passionate, that brings your skills and knowledge to life. When you are truly passionate, even if you lack sufficient skills you will find a way to acquire them.
Passion compels and enables you to connect with whatever is necessary to express and fulfill that passion. Passion pushes you into action, and supplies the energy for perseverance.
What are the things that ignite your passion? It's well worth your time and effort to know exactly what they are.
-- Ralph Marston
Inspired by their 2007 memoir, “The Power Of Two” offers an intimate portrayal of the bond between half-Japanese twin sisters Anabel Stenzel and Isabel Stenzel Byrnes, their battle with the fatal genetic disease cystic fibrosis (CF) and miraculous survival through double lung transplants. Defying all odds, Ana and Isa have emerged as authors, athletes and global advocates for organ donation, and their connection to the CF and transplant communities provides rare insight into the struggles — and overlooked joys — of chronic illness.
As you may already know my father is a lung transplant recipient and another transplant recipient gave him an article to read back in October of 2007. I just came across it again and I wanted to share with you a poem that was in the article that was written by Robert Noel Test (1926-1994) entitled To Remember Me and it is about donating organs after death.
The day will come when my body will lie upon a white sheet neatly tucked under four corners of a mattress located in hospital busily occupied with the living and the dying.
At a certain moment a doctor will determine that my brain has ceased to function and that, for all intents and purposes, my life has stopped.
When that happens, do not attempt to instill artificiallife into my body by the use of a machine. And don’t call this my deathbed. Let it be called the Bed of Life, and let my body be taken from it to help others lead fuller lives.
Give my sight to a man who has never seen a sunrise, a baby’s face or love in the eyes of a woman.
Give my heart to a person whose own heart has pain.
Give my blood to the teenager who was pulled from the wreckage of his car, so that he might live to see his grandchildren play.
Give my kidneys to one who depends on a machine to exist from week to week.
Take my bones, every muscle, every fiber and nerve in my body and find a way to make a crippled child walk.
Take my cells, if necessary, and let them grow so that , someday, a speechless boy will shout at the crack of a bat and a deaf girl will hear the sound of rain against her windows.
Burn what is left of me and scatter the ashes to the winds to help the flowers grow.
If you must bury something, let it be my faults, my weaknesses and all my prejudice against my fellow man.
Give my sins to the devil. Give my soul to God. If, by chance, you wish to remember me, do it with a kind deed or word to someone who needs you.